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Deperate help needed for my 12 yr old son with an enourmous amount of allergies

post #1 of 15
Thread Starter 

I am very new to the forum but thought this would be a place where people of much greater talent then me can help my son with an enormous amount of allergies.  I am trying to think of new things to make for him that I never made before and your ideas and help would be greatly appreciated as my skills are every basic.  For example I make chicken noodle soup in a crock pot for him (fresh chicken, carrots, potatoes, corn, sea salt pepper.  Or baked cod / salmon with sea salt and canola oil.

 

We just discovered he is not allergic to black pepper on Sunday. 

 

Any suggestions you may have would be truly helpful.  If you know any store bought food that confirms to this strict diet I would like to know also as I may be over looking something.

 

Here is what he can eat (nothing deviates from this list).

 

Thank you again

 


 

  • Apples
  • Pears
  • Oranges
  • Organic Chicken (Includes 100% Organic Ground Chicken)
  • Quinoa (Includes Quinoa Flour and Quinoa Flakes)
  • Baking Soda
  • Cod Fish (not farm raised)
  • Salmon (Line Caught)
  • Spinach
  • Broccoli
  • Wesson Brand Canola Oil
  • Potatoes (red or Yellow)
  • Carrots
  • Nutramigen Infant Formula
  • Pumpkin
  • Winter Squash
  • Corn
  • Salmon (non Farm Raised)
  • Hershey Brand Cocoa
  • Buckwheat
  • Watermelon
  • Davids Sunflower Seed
  • Organic Blueberries
  • Buckwheat
  • Parsley
  • Green Bell Peppers
  • Sea Salt Kosher Salt
  • Turkey
  • White Rice
  • Brown Rice
  • Safflower Oil
  • Black Pepper
  • Tapioca
  • Raw Brown Sugar
post #2 of 15

I didn't know one could be allergic to certain brands. eek.gif

 

How did you determine he was allergic to all things but the ones on that list? Surely he hasn't tasted everything else yet. 

post #3 of 15
Thread Starter 
Quote:
Originally Posted by French Fries View Post

I didn't know one could be allergic to certain brands. eek.gif

 

How did you determine he was allergic to all things but the ones on that list? Surely he hasn't tasted everything else yet. 

 

These are the brands we know he is OK with for example cape cod chips and lays chips have the same ingredients however he reacts to cape cod due to a possible production line cross contamination versus lays who keep a much more stringent cross de-contamination policy.  This is also true with sugar, black pepper. It is not the fact he is allergic to the brand but instead the possible cross contamination that may take place due to different flavors etc being used on the same line without proper cleaning methods.  Hope that helps

post #4 of 15

So how did you determine the allergies? The reason I ask is, I know of several cases of parents who believed their kid were allergic (to eggs, to dairy, to gluten...) only to realize one day by accident that the kid was not allergic to those products after all. And I've never heard of anyone making a "negative" list, meaning one of the things you can eat (vs the things you're allergic to). I mean, there's no possible way you could know for sure that your kid is allergic to everything that's not on that list. And IMO that list is wayyyy too limiting to bring a 12 year old the balance of nutriments he needs to grow in a healthy way. 

post #5 of 15
Thread Starter 
Quote:
Originally Posted by French Fries View Post

So how did you determine the allergies? The reason I ask is, I know of several cases of parents who believed their kid were allergic (to eggs, to dairy, to gluten...) only to realize one day by accident that the kid was not allergic to those products after all. And I've never heard of anyone making a "negative" list, meaning one of the things you can eat (vs the things you're allergic to). I mean, there's no possible way you could know for sure that your kid is allergic to everything that's not on that list. And IMO that list is wayyyy too limiting to bring a 12 year old the balance of nutriments he needs to grow in a healthy way. 

 

I tried replying and the post hung so I am going to try to type it again.  My son is anaphylactic to soy, wheat, eggs, dairy, nuts etc... 


 

He goes to CHOP (Children's Hospital of Philly) for food testing where this year out of 6 challenges he had 3 anaphylactic reactions.  I know the list is very short but everything for example salt and pepper needs to be tried and monitored because at times the reaction may take a day or two to appear.  That is why I am here maybe a person with real culinary talent can make asme unique suggestions to add some life into his very basic diet by using the above ingredients in a different way or combination

 

post #6 of 15

try to go and buy

probiotics and all kinds of similar things (powdered versions...) take in 1~2 after each meal.. pretty sure ur kido will be non allergent to many things after.. a couple months?

during the same time.. LITTLE bits of the foods on ur list... LITTLE LITTLE bits

as long as the thing doesnt cause severe - instant K.O allergy reactions

slowly .. allergy will become immune

 

the reason people are allergic to things is that the object of allergy is viewed as a foreign object from the human body

maybe some people are born without the particular tolerance for some things... therefore repeatingly stimulation... but not TOO much stimulation will slowly build up tolerance

 

just like lactose intolerance.. start off with a bit.. slowly its GONERS

 

and this works just like one of those shots they give so you wont get particular flu...

 

<hope this helps>

(I had blood test with a list of over 100 allergens but... im still here and eating all of it + sources from a biomedical phd)

post #7 of 15

An idea that comes to mind is:

 

- Saute some bit size chicken pieces in oil, add broccoli, serve over brown or white rice. 

 

I can't get over how limiting this list is... Can he have onions? garlic? leeks? fennel? cilantro? mint? basil? turnips? fish? pork, beef, lamb, venison, veal, turkey...? etc...

post #8 of 15

Wow ok I'm really sorry to hear that... Sharya. So every time he tries to eat something he's never had before you have to monitor him pretty closely then I guess... 

post #9 of 15

Fang has a very good example of food allergy's being cured.

Maybe he will provide a link or two for a loving (and very protective) mom just trying to feed her child without killing him.

I am quite sure she has probably read most, if not all of the info out there, but the pro- biotic part sounds sensible as well as promising.

 

mimi

post #10 of 15

Check your PM box.

I shared a few simple tips.

post #11 of 15

What a difficult thing to be facing, I cannot imagine how scary it might be for food to be deadly.  Thankfully your list does contain plenty of nutrients if not all.  The first thing that comes to mind is buckwheat pasta with chicken meatballs. I don't see tomatoes on your list.  That's ok, as long as you add herbs and spices to your son's food he'll get lots of flavor.  For the meatballs mix 1lb ground chicken with a half cup of cooked (mushy) white rice, and some finely chopped green peppers.  Add some fennel seeds (if he's not allergic to those) which will make it taste like sausage.  Serve with buck wheat pasta in a sauce made with chicken stock.

 

I'm thinking of all kinds of risotto, squash, spinach, broccoli, and serve with fish.  You can even make dessert risotto with cocoa!

 

Also, I do hope you reach out to a community of other mothers who deal with these sorts of allergies, a sort of live support group and an online community as well.  This is unfortunately a foodie community and you may get more questions than answers here.  I once knew a mom who kept a special cupboard in the kitchen filled only with things her son could eat, it was his special cupboard and he was the only one in the family allowed to scavenge for snacks in it :)

"You are what you eat, so don't be fast, cheap, easy, or fake."

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"You are what you eat, so don't be fast, cheap, easy, or fake."

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post #12 of 15

well, if that's his photo he looks pretty healthy and happy...it's hard to watch any child suffer....excuse my ignorance but is this something that he will 'grow' out of? or will it constantly change?  i wish you and your family all the best with this...it cannot be easy to try to nourish your child while not always knowing the outcome. so while not completely understanding everything about what he can and cannot eat, here are a few ideas off the top....

grilled salmon with bluebbery relish

"         "           "    grilled watermelon relish

"     "               "    corn relish(green peppers, parsley, s&p)

brown rice fritters(cakes) or buckwheat or a grain combo with corn, peppers, parsley, salt......bind with potato flakes or polenta if allowed or form and cook them while the rice is still warm or bind with the infant formula and quinoa flour

steak fries with sea salt

roasted broccoli with sea salt

roasted quinoa salad with lemon, parsley,oil and salt

sauteed broccoli and orange segments

turkey burgers with corn relish

spinach and pear salad with mtoasted pumpkin seeds and purreed apple vinaigrette

glazed carrots with honey or raw brown sugar and cinnamon

winter squash and apple soup

fish and chips sort of(cod) dredged in polenta or quinoa flour

chicken tenders rolled in polenta or crushed potato chips......if instant potato flakes are allowed they make for a wonderful dredge and binder for lots of things

can he eat rice noodles or spring roll wrappers? if so fill rice papers with any vegetable he can tolerate....dipping sauce....orange vinaigrette

stuffed green peppers with brown rice, or buckwheat, turkey, corn, parsley......roast the peppers

 

hope this helps...will try to think of more for him....what does he like the most?

 

joey

after thinking some more on this i have a few more thoughts and questions.....

you mentioned a chicken soup you make...a heartier stew could be made by using potatoes to thicken the broth...mash a few potatoes in the pot as well as dicing some for the soup itself. any of the grains or vegetables you list can be added. chicken fajita soup(only green peppers).....can he tolerate corn tortillas? they are great to thicken soups if he can... what else do you make?

any of the fruits you list can easily be made into vinaigrettes for salads or sauces.....grilled chicken breast with blueberry sauce? maybe dredged in quinoa flour with some cocoa powder in it and sauteed....topped with a fruit sauce?  a simple herb(s&p, parsley,oil) roasted chicken or turkey breast with rib meat......will you be adding 'safe' foods to your list for us as you go along? what about jicama, honey, celery, lemon, any vinegar, fresh herbs or spices?

 

 

sharya,

 you are both correct and smart to seek help from a cooking forum...particularly this one. there are some very talented, creative cooks here(both pro and home) who are generous with  both their time and their knowledge.  i for one appreciate the opportunity to help another human being by sharing any talent or knowledge i have. you will find that most here will as well.......welcome!

joey


Edited by durangojo - 10/3/12 at 7:46am

food is like love...it should be entered into with abandon or not at all        Harriet Van Horne

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food is like love...it should be entered into with abandon or not at all        Harriet Van Horne

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post #13 of 15

Pickled watermelon rind.  :)

post #14 of 15

Turkey with.... roasted corn puree, roasted potatoes and carrots.

 

soups... a few of those vegatables make fine soups by simmering them until tender, pureeing, seasoning, and adding enough of the water they were cooked in to get the desired consistency.

 

Fruit salads, I've never in my life been able to get enough fruit salad.

 

Buckwheat pasta, requires only buckwheat flour, water, and a pinch of salt. Served with spinach, broccoli, and maybe some chicken, fish, or sunflour seeds.

 

Grated carrot salad with an orange juice dressing...

 

The challenge for me is the apparent lack of dairy on this list... I'll try to come up with more.

post #15 of 15
Hi there,
My daughter and I have several allergies and have to do all of our own cooking, so I know how challenging it can be.
first of all, it would help to know some of your son's favorite foods-does he like crunchy foods? If so, try making some latkes/fried potato cakes with parsley...the starch in the potatoes wil help them hold together. You could also make chips from squash or carrot and deep fry them.

Try doing a google search on "scd recipes" and you may find some very good ideas. Scd is a restrictive diet for those suffering from IBD, etc and many recipes are simple and tasty. There are also cookbooks written for scd, you can check amazon.com. Raman Prasad has a good one that he wrote.

As for store bought, you could try rice cakes-I buy Mother's brand but most have just brown rice and salt in them. They make a great bread substitute/vehicle for meats, sautéed veggies, even fruit compote homemade.

Sami's Bakery in Florida mail orders bread that is made only with millet and a few other ingredients...at some point when your son does future challenges, maybe you can get millet added to his allowable list.

Also, check our Dr. Steve Nenninger website as he does allergy testing for iga and iga antibodies and you may be able to get a broader handleon what your son might be able to tolerate...through these tests we discovered my daughter had sensitivities to several things would not have thought of, like bananas.

Good luck and take care!
melanie
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